Kate clinic update 2/9/11

Kaitlyn had a clinic visit on my birthday, and I have been meaning to update everyone, but it was a busy couple days here....Clinic went pretty well, we were worried about her PFT as she has been coughing for about a month now. Her original visit should have been a week earlier, but her doctor had a family emergency. Anyway, her PFT's were close to what they were the last time, although down a little bit. He didn't give me an actual number, but she was in the 90's last time, so I am glad she has stayed so close to that. She is more congested though, and he has made us add manual CPT.... of course Kaitlyn responds with her usual humor... "Hey Mom, now we can get you that shirt!"

Guess it's a good thing she has my sense of humor. So anyways, she is handling that in stride too. She also had to add yet another medicine to her regimen. She has to now take a probiotic due to all the antibiotics she has been on in the last 5 months. Dr. F said he doesn't want to put her on another antibiotic for her congestion, since she has already done 4 rounds in 5 months, and he thinks that may be the cause of all her belly issues right now. I still think the enzymes are to blame, but he said it can take a few weeks to have the new ones work, and he wants to give it some more time before trying to switch them again. We go back to see him in 2 weeks to see if the probiotics helped at all, and to see if her chest congestion is any better... if not I don't know what's next.

The bad news is Dr. F has decided to move. He is moving in 4 months to Orlando. That means we have to find Kaitlyn a new pulmonologist that has a CF clinic.... I think we are going to move her to All Children's, since that is where her new GI doctor is, but we are very bummed about losing Dr. F. Hopefully he can get her all straightened out before she has to see the new doctor in June.