I can't count how many times I've had to tell myself to "breathe through it".... it takes on a whole new meaning to me as the mom of a newly diagnosed "CFer". I'm new to this, all of it, and here is where I plan to track our journey and keep loved ones in the loop...
Writing Roses for Cystic Fibrosis
I couldn't be more proud of my daughter Kaitlyn. She has had a rough time with CF, being diagnosed so late means she remembers what it is like to not have to to hours of breathing treatments and take handfuls of pills every day. Still she has a great attitude about it most of the time, whether she wants to do them or not... but what really makes me proud, is that she not only thinks of herself when it comes to this disease, but everyone else as well. She and I taught ourselves how to make duct tape rose pens, and she decided she wanted to perfect this talent and use it to benefit the Cystic Fibrosis Foundation, and she did! She created a page on facebook called Writing Roses for Cystic Fibrosis, where she posts pics of the pens and people can order, then she takes all the profits and donates them to the CFF!!! She really is an amazing kid, if you'd like to check out her page, go to:
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