Kaitlyn hospital update

So last week on Friday Kaitlyn had a sick visit at the pulmonolgist, where they decided to go ahead and admit her due to decreased PFT's and some obvious sinus issues. We worked it out where we went up the next morning so we had some time to pack up the car and get ready, so she was admitted on Saturday for what was supposed to be a two week stay. After a few days they rechecked her PFT's and they actually went down a percent, instead of up like they hoped. Also, this past Saturday (which marked one week in the hospital) they got the culture results back which showed she was resistant to the IV meds they had been treating her with for the whole week. So Saturday they switched her meds. Unfortunately Kaitlyn didn't tolerate the new medicine too well... She spent the next couple days in bed with no appetite and really bad nausea. The zofran they gave her didn't seem to make much impact, so yesterday the doctor switched her meds again, and this morning she finally started feeling better... just in time too, because she had 3 visitors today and she had the energy to enjoy their company! (Good timing for Dad, Nana, and Great-Grandma! Yay)

So anyway, we talked to the doctor today, and Kaitlyn probably won't be going home Saturday after all... he said it depends on her PFT's which they are repeating again this Friday, but he is looking more towards the middle of the week. I am hoping before Wednesday, since that is when I start school, and Kaitlyn will have already missed two + weeks, but she is my first priority, so she stays as long as necessary... we did have some good news though... although they said her sinuses don't look great (I guess in CF patients they really never do,) she doesn't need surgery! so Yay for that.... she does however have to start doing sinus rinses 3 times daily and they are putting her on a nasal steroid for God only knows how long... all they could tell me is the rinses are for the rest of her life, the steroids are "long term". So far she is not so big on the rinses at all, but she says the steroid spray is easier.

All in all she has been doing about the same... a little better as far as energy and appetite, which is great. She was steadily gaining weight until the switch in meds, and now that she is feeling better hopefully that will pick back up. Her PFT's haven't budged yet, but I am hopeful they will also be better by Friday. I really hope so, because the other possibility, that this is her new baseline scares me as that would mean about a 20% drop in lung function in only 11 months... we are praying they will be better and if not, we will still be thankful because we know it could always be worse. Kaitlyn is doing her medicines and treatments the way she is supposed to and that is the best she can do.... everything else is in God's hands.

Thanks for all the prayers, if you want to send Kaitlyn a message, she is on facebook... she loves getting the notes and comments from everyone... the visits too, but it is a long way to drive :)

And although Gabby is enjoying being her with her Sissy, the hospital has not been as good to her.... not the hospitals fault, she is accident prone and way to adventurous for her own good... she has fallen countless times, gotten bumps, bruises, scrapes, etc... she looks a little worse for wear then when we got here, but she is all to happy to get all the toys both the hospital and the Ronald McDonald house keep showering her with...  between hers and Kaitlyn's I may just have to rent a U-Haul to get all this stuff back home...